Sunday, January 31, 2010

Its truly amazing!

I can't tell you enough how amazing this feels to be able to walk around my home, hang out, help my daughter with every day things, cook without the assistance of oxygen or my PH medication.
I went out today (stayed in the car) but the only thing I brought was me! no oxygen, bags, medications, me myself and I, and a pillow to protect me in the car. So cool right?! I feel tired today though sleep hasn't been the easiest, I have to get up and pee constantly and then I get uncomfortable with the healing and incision. Its sore but I wouldnt say painful just achy. I can't complain though I really think so far I have done fabulous and feel at times worried its going to be taken away from me. I know I need to train my mind to think otherwise though or I will become one ball of paranoia.

We went to go see the new house, hasn't started to be built yet but we got to peek into a house that looks the same as ours, so great its going to be fab! I keep saying its smaller because it is but I know we wil get used to it and with all our fab design touches this house is really going to be fly.

talk soon


  1. Shannon,
    It gives me hope to read about people who are doing well post-TP. KEep on Rocking those new lungs.
    Do you mind if I ask you a few questions tho? We're you REALLY sick before your surgery? I am going to my first pre-evaluation appointment at the end of Feb, and that is one thing that stays on my mind. I dont feel TERRIBLE, but I know I could be feeling better. How do they determine wether you are on the active list?

    Hoping to hear from you soon. ~Angie

  2. Glad to see you've continued with the blogging. It will be a good outlet to spill all those feelings you must have swirling in your heart and head Shannon. We can all learn from you.

  3. I'm so glad you're doing good! I am sure it's a wonderful feeling not to be tethered to anything anymore! I pray you continue to get stronger every day! :)